Genetic Exceptionalism

P. Kakuk

doi:10.1016/B978-0-12-373932-2.00036-3

Genetic Exceptionalism

P. Kakuk^*

^*Corresponding author for this work

Center for Ethics and Law in Biomedicine

University of Debrecen

Research output: Contribution to Book/Report types › Chapter › peer-review

Abstract (may include machine translation)

The view that genetics raises distinct issues has been labeled genetic exceptionalism, borrowing a term that was used previously for the exceptional policy treatment of HIV. Genetic exceptionalist policies provide special protections for the access and use of genetic information and usually refer to the privacy interests of individuals regarding their personal genetic information and the potential for genetic discrimination of individuals or groups based on their genetic information. This article briefly presents the policy consequences of exceptionalism, identifies the underlying conceptual problems of defining genetic information, and discusses the advantages and disadvantages of genetic exceptionalism.

Original language	English
Title of host publication	Encyclopedia of Applied Ethics
Subtitle of host publication	Volume 1-4, Second Edition
Editors	Ruth Chadwick
Publisher	Elsevier
Pages	445-452
Number of pages	8
Volume	1-4
ISBN (Electronic)	9780123739322
ISBN (Print)	9780123736321
DOIs	https://doi.org/10.1016/B978-0-12-373932-2.00036-3
State	Published - 1 Jan 2012

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

DNA
Employment
Eugenics
Genetic discrimination
Genetic information
Genetic privacy
Human Genome Project
Insurance

Access to Document

10.1016/B978-0-12-373932-2.00036-3

Cite this

@inbook{cbea2b2e32d743b689374139cc427b43,

title = "Genetic Exceptionalism",

abstract = "The view that genetics raises distinct issues has been labeled genetic exceptionalism, borrowing a term that was used previously for the exceptional policy treatment of HIV. Genetic exceptionalist policies provide special protections for the access and use of genetic information and usually refer to the privacy interests of individuals regarding their personal genetic information and the potential for genetic discrimination of individuals or groups based on their genetic information. This article briefly presents the policy consequences of exceptionalism, identifies the underlying conceptual problems of defining genetic information, and discusses the advantages and disadvantages of genetic exceptionalism.",

keywords = "DNA, Employment, Eugenics, Genetic discrimination, Genetic information, Genetic privacy, Human Genome Project, Insurance",

author = "P. Kakuk",

year = "2012",

month = jan,

day = "1",

doi = "10.1016/B978-0-12-373932-2.00036-3",

language = "English",

isbn = "9780123736321",

volume = "1-4",

pages = "445--452",

editor = "Ruth Chadwick",

booktitle = "Encyclopedia of Applied Ethics",

publisher = "Elsevier",

address = "Netherlands",

}

TY - CHAP

T1 - Genetic Exceptionalism

AU - Kakuk, P.

PY - 2012/1/1

Y1 - 2012/1/1

N2 - The view that genetics raises distinct issues has been labeled genetic exceptionalism, borrowing a term that was used previously for the exceptional policy treatment of HIV. Genetic exceptionalist policies provide special protections for the access and use of genetic information and usually refer to the privacy interests of individuals regarding their personal genetic information and the potential for genetic discrimination of individuals or groups based on their genetic information. This article briefly presents the policy consequences of exceptionalism, identifies the underlying conceptual problems of defining genetic information, and discusses the advantages and disadvantages of genetic exceptionalism.

AB - The view that genetics raises distinct issues has been labeled genetic exceptionalism, borrowing a term that was used previously for the exceptional policy treatment of HIV. Genetic exceptionalist policies provide special protections for the access and use of genetic information and usually refer to the privacy interests of individuals regarding their personal genetic information and the potential for genetic discrimination of individuals or groups based on their genetic information. This article briefly presents the policy consequences of exceptionalism, identifies the underlying conceptual problems of defining genetic information, and discusses the advantages and disadvantages of genetic exceptionalism.

KW - DNA

KW - Employment

KW - Eugenics

KW - Genetic discrimination

KW - Genetic information

KW - Genetic privacy

KW - Human Genome Project

KW - Insurance

UR - https://www.scopus.com/pages/publications/85069161663

U2 - 10.1016/B978-0-12-373932-2.00036-3

DO - 10.1016/B978-0-12-373932-2.00036-3

M3 - Chapter

AN - SCOPUS:85069161663

SN - 9780123736321

VL - 1-4

SP - 445

EP - 452

BT - Encyclopedia of Applied Ethics

A2 - Chadwick, Ruth

PB - Elsevier

ER -

Genetic Exceptionalism

Abstract (may include machine translation)

UN SDGs

Keywords

Access to Document

Other files and links

Fingerprint

Cite this