Genetic Exceptionalism

P. Kakuk*

*Corresponding author for this work

Research output: Contribution to Book/Report typesChapterpeer-review

Abstract (may include machine translation)

The view that genetics raises distinct issues has been labeled genetic exceptionalism, borrowing a term that was used previously for the exceptional policy treatment of HIV. Genetic exceptionalist policies provide special protections for the access and use of genetic information and usually refer to the privacy interests of individuals regarding their personal genetic information and the potential for genetic discrimination of individuals or groups based on their genetic information. This article briefly presents the policy consequences of exceptionalism, identifies the underlying conceptual problems of defining genetic information, and discusses the advantages and disadvantages of genetic exceptionalism.

Original languageEnglish
Title of host publicationEncyclopedia of Applied Ethics
Subtitle of host publicationVolume 1-4, Second Edition
EditorsRuth Chadwick
PublisherElsevier
Pages445-452
Number of pages8
Volume1-4
ISBN (Electronic)9780123739322
ISBN (Print)9780123736321
DOIs
StatePublished - 1 Jan 2012

Keywords

  • DNA
  • Employment
  • Eugenics
  • Genetic discrimination
  • Genetic information
  • Genetic privacy
  • Human Genome Project
  • Insurance

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