‘Even a Self-Advocate Needs to Buy Milk’: Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement

Gabor Petri*, Julie Beadle-Brown, Jill Bradshaw

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract (may include machine translation)

Autistic people and people with an intellectual disability have been actively involved in disability advocacy; however, it is still often parents and professionals who lead organisations speaking on their behalf. Previous studies have found that autistic self-advocates and self-advocates with an intellectual disability have been systematically marginalised in the disability movement. This article appraises how economic factors influence self-advocates’ position within the disability movement, based on qualitative analysis of data collected in two countries, the UK and Hungary. The study found that lack of resources, poverty and unpaid positions at organisations strongly hinder self-advocates’ participation in advocacy/disability rights organisations speaking for them. Findings also suggest that practices of disability organisations may contribute to maintaining these barriers.

Original languageEnglish
Pages (from-to)180-191
Number of pages12
JournalScandinavian Journal of Disability Research
Volume23
Issue number1
DOIs
StatePublished - 2021
Externally publishedYes

Keywords

  • Autism
  • Disability advocacy
  • Disability movement
  • Hierarchy
  • Income
  • Intellectual disability
  • Poverty

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